Substance

canakinumabum

9 orphan drug statuses1 medicine7 rare diseases

The active substance canakinumabum carries 9 Swissmedic orphan drug statuses in Switzerland, across 7 rare diseases.

1 medicine containing it is published with an authorisation number. The rarity criterion of 5 per 10,000 people applies to the disease in its entirety and per active substance, across all indications with status (Art. 6 TPLO).

Medicines

Orphan designations

Swissmedic publishes one row per medicine and orphan indication: the indication in the wording of the decision, the date the status was granted and, where the status was withdrawn, the withdrawal date. The table below reproduces those rows unchanged and links every indication to the matching rare disease in the directory.

One row per orphan indication, exactly as Swissmedic publishes it.
Orphan indicationDiseaseStatus grantedStatus withdrawn
Adultes Still-SyndromAdult-onset Still disease18/12/2017Status active
Behandlung des Hyperimmunglobulin-D- und periodischen Fiebersyndroms (HIDS)Hyperimmunoglobulin D syndrome (HIDS)15/11/2016Status active
Behandlung der Cryopyrin-assoziierten periodischen SyndromeCryopyrin-associated periodic syndromes (CAPS)15/11/2016Status active
Behandlung des familiären MittelmeerfiebersFamilial Mediterranean fever (FMF)15/11/2016Status active
Behandlung der pädiatrischen juvenilen rheumatoiden ArthritisJuvenile rheumatoid arthritis15/11/2016Status active
Behandlung des TNF-Rezeptor-assoziierten periodischen Syndroms (TRAPS)TNF receptor-associated periodic syndrome (TRAPS)15/11/2016Status active
Behandlung der juvenilen idiopathischen Arthritis mit systemischem BeginnSystemic juvenile idiopathic arthritis (sJIA)18/02/200909/05/2012
Behandlung der juvenilen idiopathischen Arthritis mit systemischem BeginnSystemic juvenile idiopathic arthritis (sJIA)18/02/200909/05/2012
Behandlung der Cryopyrin-assoziierten Periodischen Syndrome (CAPS) wie des Muckle-Wells-Syndroms (MWS), des familiären autoinflammatorischen Kälte-Syndroms (FACS) und der multisystemischen entzündlichen Erkrankung mit Beginn im Neugeborenenalter (NOMID)/des chronischen infantilen neuro-dermo-artikulären Syndroms (CINCA)Cryopyrin-associated periodic syndromes (CAPS)13/06/200820/12/2010

Reimbursement

Whether a medicine containing this active substance is paid for by compulsory health insurance depends on the FOPH specialities list (SL), not on the orphan drug status. Medicines that are not listed can be reimbursed case by case under Art. 71a-71d KVV.

Search the specialities list

Frequently asked questions

How does a medicine obtain orphan drug status in Switzerland?

On application to Swissmedic. It requires a life-threatening or chronically debilitating disease affecting no more than 5 in 10,000 people in Switzerland, or an existing recognition in a country with comparable medicinal product control (Art. 4 para. 1 let. a decies TPA, Art. 4 TPLO).

What does the status actually give you?

The simplified authorisation procedure (Art. 14 para. 1 let. f TPA), priority assessment, a waiver of the flat-rate fee for the new authorisation application and, on request, 15 years of document protection (Art. 11b para. 4 TPA). There is no market exclusivity as in the EU.

How current is the data on canakinumabum?

Swissmedic publishes the list of medicinal products with orphan drug status under Art. 7 TPLO and updates it monthly. The date of the data set processed here is shown at the foot of every page.

See the service

Bring your orphan drug to Switzerland

You can enquire about orphan drug status, authorisation and reimbursement in Switzerland. Any specialist service and its scope are agreed separately with the external partner.

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